16 June 2012

Sydneygrams: The MRI edition

I will be glad when this week is over.  And, by week, I mean all of the unpleasant hospital visits / doctor's appointments / baby fever business is over with.  Hoping that is tomorrow.  Or tonight, for that matter.


Sydney's original MRI was Wednesday morning at 8.  I was worked up for a number of reasons, the biggest being the fact that she would have to go under a general anesthesia for the scans.  That is scary stuff for this mama who worries over each little bump, bruise and scratch.  In addition to that, Sydney does not generally sleep through the night, and relies on the Mommy Pacifiers to get her back to sleep.  {As sleep deprived as I am, they are only young once and I cannot stand to hear her cry unnecessarily for any length of time.}  I was going to have to cut her off of those at 3am, so I was worried we might have a nightmarish early morning.  Fortunately, I was able to nurse her and have her back down by 2, but she was up at 5 and could not go back to sleep.  Thank you, Mickey Mouse Clubhouse, for keeping her mind off of her hungry belly.


We got to the hospital around 7 and fortunately she had slept some in the car and was very happy and relaxed in my Ergo {which is more than I can say for myself}.  They did the work-up and I think I teared up through most of it.  The nurse and anesthesiologist were both very nice, but I couldn't help but bawl my eyes out once they took her back.  The procedure lasted a little over an hour and it was just the saddest thing to see her coming off of the anesthesia.  She took right to nursing {duh, she sleep nurses a lot} and eventually came back to her normal happy self.  We were so relieved to have that over with.  The nurse told us that no news was good news and we would hear something from our doctor in 24-48 hours.


When Thursday morning rolled around, I was feeling pretty confident that it was the hemangioma that the doctors had originally thought - there were no calls for more tests, blood work, or emergency surgery, so I felt more relaxed.

Around 5:15 Thursday evening, I got a phone call from an administrator at the hospital who said she was conferencing in with the doctor from radiology.  Oh my word, I can't tell you how quickly my heart began to beat.  It's amazing what my mind could race to in a matter of 15 seconds before she told me the reason for the phone call -- at Wednesday's MRI, they imaged the wrong arm.  It is unbelievable to me that something like that could happen as I stressed to the anesthesiologist, the nurse and the tech which arm it was.  They felt the mass and everything.  But, it happened, and the MRI needed to be done again.  You can't imagine how upset I was.  I think there were at least four different people on the phone with me - all apologizing and promising to make it right.  My only thought was that she was going to have to undergo anesthesia again.  I called my doctor to make sure that he was okay with her having this done two times in 48 hours.  He was just as upset with the hospital, but assured me it was completely fine for her to be put under again.


My dad and I took Sydney up Friday morning {as David had work things to do and couldn't get them all done the night before}.  It was pretty much the same routine as Wednesday except completely different people and a lot of apologies.  They promised us the results before we left the hospital, which was going to be nice so that we wouldn't have to wait over the weekend.

Sydney again did great under the anesthesia, but she was a lot more disoriented this time coming out of it.  But, within 10-15 minutes of nursing she was smiling and clapping {although she was very annoyed with the IV left in her arm in case the doctors wanted blood work done after seeing the scans}.  One of the administrators came in and brought Sydney a Gund teddy bear as her way of apologizing.  Definitely an upgrade from the snail Beanie Baby she got on Wednesday.




The waiting for the results was hard - it seemed to take longer than the imaging itself.  The nurse came back to let us know that the radiologist and Sydney's pediatrician had talked and wanted Sydney to have an X-ray of her arm to further prove it was a hemangioma and to rule out some other possibilities.

We took her up to X-ray and that was the only time she really cried - she didn't want to lay still on the table.  Totally reminded me of how difficult it has become to change her diaper!  Once we got the X-ray done we were free to go.

I heard from our doctor a few hours later and he let me know that they still can't be 100% sure that it is a hemangioma.  He said there must be something in the scans that is a little different from a typical hemangioma.  The good news is that the tumor {I hate that word, but that's what it is} is benign and is completely contained.  Our next step is to meet with a pediatric surgeon to see if we wait and watch it and ultrasound it again in 3-6 months to see if it is getting smaller or to remove it.  If it is a hemangioma, it should begin to get smaller because they typically peak in size around 9 months.

Throughout all of this, we realize how blessed we are to have two very healthy girls.  There are so many things that could potentially go wrong and we are so very grateful for good health.  Thanks so much for all of your prayers and good thoughts that you have sent our way over the last couple of weeks.

Now, if I can get this fever that Sydney has had for the last 18 hours or so to completely go away, I will be one happy mama!




2 comments:

Poppy said...

I know you are a worrier just like your mama but things are gonna be alright. You are blessed to have to healthy babies. this is just a bump in the road of life. We all have prayed that it would not be serious and the good lord has answered our prayers.
I'm so glad you asked me to go with you to the hospital. I wouldn't have wanted to be anywhere else.
Love you for being a great mom and love this lil gal soooo much!

Poppy

Mom Cooper said...

Life is full of ups and downs, and if it weren't for the downs we would never really appreciate the ups. This situation with Sydney was both a downer and an upper. God did answer our prayers and we just give Him the praise for that.

God will see us through all our worries if we just ask and believe.

Love you all so much.